April 25, 2009

Had lunch in Annapolis today...

...and shot some HD video at the US Naval Academy and thought I would share:




April 24, 2009

Another biopsy

And still rejection free.

Happy Birthday mom!

April 18, 2009

New YouTube video in HD

Check out today's video (2 minutes long) of me out and about in DC. That should link straight to the HD version, but if not, click the HD button at the bottom right corner of the video player.

April 13, 2009

Quickie update

I had a great week last week. An old Air Force buddy was in town and we had dinner in Georgetown. Also, one of my best friends (we were in kindergarten together) was in town with his family for Easter and we hung out Friday and Sunday nights. Very good to see some friendly faces I hadn't seen in a while. My cousin, Marc, arrives from San Diego tomorrow. We're driving up to Philly to see Grandma sometime next weekend and I will get a cheese stromboli from the Station Pizzeria...trust me it doesn't need any other toppings.

April 7, 2009

good news everyone

Yesterday's heart biopsy results are in and there was no sign of rejection. They've made some adjustments (downward) on my medicines and I will have another biopsy in two weeks. This is really good news!
-Ben

Oh, and my voice is back too. It happened very rapidly since about Thursday.

April 5, 2009

some pics

Nice weather here in our nation's capitol. I walked around the National Mall and Chinatown area yesterday and avoided the Cherry Blossom festival crowds. Here are a couple of pictures from my patio today:

  

March 31, 2009

Home again

I came home yesterday afternoon. It was a less triumphant return than after my transplant, but felt even better to be home. It was the longest, most boring, most uncomfortable 6 days ever. They just don't seem to feed me enough or manage my diabetes well and I lost weight and came home feeling drained. It feels so good today to be pigging out, closely managing my blood sugars, and getting so much more exercise.

As far as the treatment goes (or went)... they could tell from the lab work that it did knock my immune system down which should end the rejection of the heart, but they won't know for sure until the next biopsy which, I believe is in two weeks.

March 30, 2009

home later today

They are going to do an ultrasound of the heart and a chest x-ray and then get me out of here. Hooray. I am hospital'd out.

March 27, 2009

hospital update

Been a while since I've posted. I've just been hanging out trying to keep myself entertained and get some work done. I feel great and get an IV treatment once a day. Hopefully, this will do the trick, but they won't know for a couple of weeks after I go home and they do another biopsy. The plan is last treatment Sunday, keep me overnight and have checked Monday morning. If all is good, I will go home.

People have emailed me pointing out that the point of a blog is to share emotional insights, etc. I really just set this up as an easy way to do mass status updates. I guess this whole experience could be motivational to others. I don't think I will blog it, but I will start to write about my experience and stick it on a webpage as it progresses.

March 24, 2009

We've had a setback

The results from Monday's biopsy are in and the rejection they saw in the last one is still there. They have asked me to come back into the hospital for 5-7 days of IV drugs to get my immune system knocked down a notch or two. They think once they get it where they want, maintaining it will not be a problem.